Research domain
Rare diseases grants
Grants for orphan disease research, rare genetic conditions, undiagnosed diseases
4 open calls matched
Rare disease funding often has niche funders with dedicated programmes (CZI Rare As One, Chan Zuckerberg Biohubs, rare-disease-specific charities). Broader funders (ERC, Wellcome, Horizon Europe) include rare disease as one pillar of their health portfolios. Scope ranges from patient registries and natural-history studies to mechanism research and gene/cell therapy development.
Top funders in this domain
Open calls
Fondazione Telethon
ERDERA Joint Transnational Call (JTC) 2026
16 Sept 2026 · 3d
Joint transnational call under ERDERA funding rare disease research projects across multiple participating countries.
NIHR
Use of Synthetic Data in Health and Social Care Research
Up to £625k (100% FEC); NIHR/MRC fund up to 80% FEC
Joint NIHR/MRC call (Better Methods, Better Research programme) for methodological research on synthetic health/social care data: privacy-fidelity trade-offs, regulatory frameworks, complex data structures (time-series, longitudinal, mixed types), rare diseases, and health economics. Public and patient involvement required throughout. NIHR/MRC fund up to 80% FEC.
SNSF
EJP Rare Diseases
Rare diseases. Multilateral initiative; Swiss researchers fully eligible. Funding provided by SNSF for Swiss-based project participants. See national annex of each call for submission details.
SNSF
Erdera
European Rare Diseases Research Alliance (successor to EJP Rare Diseases). European Partnership under Horizon Europe; Swiss researchers eligible via SNSF. See national annex of each call for submission details.
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